A former thrill seeker says she 'lost everything' after becoming bedridden by an extremely rare condition.
Becky Lawrence, 32, would go on adventure holidays with her husband and scale heights rock climbing.
But during her 20s she started to suffer chronic fatigue and bouts of dizziness.
Doctors were unable to pinpoint her condition, which saw her slowly decline over a 10-year period.
Becky, from Maghull, told Lancs Live: "Before this I used to be super healthy, really fit and active.
"I used to never sit still, I didn't know how to rest. I was always out biking and rock climbing, anything that didn't involve staying in the house really.
"Now I'm in bed all day, I can't move, I can't feed myself, wash myself or get dressed. If I move, my muscles seize up, spasm and uncontrollably jerk.
"I'm in constant pain."
This year, neurological specialists were finally able to diagnose Becky with craniocervical instability, a condition which compresses the brain stem causing severe neurological problems.
Confined to her bed 24 hours a day, Becky still remains upbeat but is now involved in a desperate bid to finance life changing surgery for her condition.
Becky's brother, Andy Taylor, 30, said that watching his sister's condition deteriorate has been a more than unpleasant experience.
He said: "I almost feel guilty at times, she was always the active one. She was always travelling and used to love climbing.
"Her and Tom would go on adventure holidays together all the time, I was the lazy sibling and then, all of a sudden, I can go climbing and she can't.
"It's been difficult to watch her, we've felt a bit helpless because we've wanted to help her so much but there's nothing much we can do."
While studying for a PHD in cardiovascular medicine at Manchester University in 2010, Becky came down with glandular fever.
Although she recovered, the condition marked the beginning of a slow and lengthy decline in Becky which would last for a full decade before doctors could diagnose her.
She said: "I started feeling extremely fatigued, I finished my PhD but by the end of it I was just surviving.
"I couldn't exercise or socialise, I was spending all my spare time on the couch just so I could recover for work."
Doctors had no idea what was wrong with Becky and she continued to deteriorate.
In 2016, while working as a research scientist, Becky became so ill that she could no longer get out of bed.
It was then that Becky had to stop going to work, losing a job that she was extremely passionate about but things continued to get worse.
She said: "In the last year or so I took a big turn for the worse. I spent a lot of time in and out of hospital and seeing doctors.
"I also developed neurological symptoms, there was a time I couldn't physically move my body, even my fingers or toes, and I was in severe pain."
Despite blinding headaches and pain all over her body, NHS doctors were still unable to give Becky a diagnosis.
With her science background and PHD, Becky took matters into her own hands and was able to finally get a diagnosis from a doctor in Spain.
Becky was told that she had craniocervical instability, a condition that causes compression of her spinal cord and veins.
The pressure restricts the blood flow out of her brain, causing a build up. This manifests in severe pain, headaches, dizziness, fatigue and excruciating neck pain.
But Becky admits that just getting a diagnosis was something of a victory.
She said: "It changed something.
"You know yourself when something is very wrong but, when it's been going on for a long time and the doctors are telling you they can't find anything wrong, you can question yourself.
"It was validation in a way, to prove I was really sick."
Becky's condition is so rare that treatment is not currently offered by the NHS.
Her family are currently raising funds to fly Becky to Spain for her to undergo spinal fusion surgery which will hopefully ease the compression on her brain stem and help her return to a normal life.
Becky said: "I'm lying down, in my bed, 24 hours a day.
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"I've lost everything to this condition, the job I loved, being able to see my friends and family, all the sport, the things I loved doing.
"But I have to stay positive, and right now I feel there is a light at the end of the tunnel with this surgery.
"I know I can never go back to normal but just being able to walk around my own house and have a shower would be everything."
Becky's family are currently trying to raise £65,000 to finance Becky's treatment.
They money will pay for consultations, surgery, pre and post-operative scans, as well as a hospital stay and medications.
If you want to donate to Becky's cause please donate to the family's GoFundMe page.