The family of a disabled girl who relied on morphine patches every day to stop her pain say they are devastated by her death at the weekend.
Jayda Jones, 11, who was born with quadriplegic cerebral palsy, died after her health deteriorated over the last few weeks.
Her mum, Nicola Jones, 36, told the ECHO Jayda died peacefully with her in the early hours of Saturday morning.
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Jayda’s disability meant she suffered with feeding problems, epilepsy and neurogenic bowels as well as undergoing a tracheostomy when she was just two years old.
Nicola has previously spoken of how her appeal for support brought a huge response from people in Huyton who wanted to help her and Jayda.
The broken-hearted mum from Huyton said: "For the last two weeks we were struggling to feed Jayda, she was in so much pain. Her belly kept swelling really bad.
"On the Saturday the pain was too much, we had to get an out of hours GP out at 3am, she was still crying at 7am.
"The Palliative care team from Claire House came on Sunday morning (March 14). They said 'she may have hours, she may have days'".
Jayda continued to fight but the pain and complications from her bowel condition took their toll.
On Friday, March 19, her family were allowed to attend to say their goodbyes.
Nicola said: "We actually got in bed and her carers were here and we painted her nails. She loved being pampered. We gave her a massage and done her hair.
"I asked them to leave at eight o'clock and so they stayed just outside the room.
"It was the most peaceful way she could have went.
"She died with just me and her in the room."
"I got her washed and put her favourite purple pyjamas on because she loved pyjamas.
"She was never comfy in clothes. She was known as Jayda Kardashian, everyone used to call her that because she had that many clothes."
Since Jayda died hundreds of tributes in the form of flowers and cards have arrived at Nicola's home in Huyton.
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Jayda's funeral will take place on Wednesday, March 31, starting at their home at 11am before moving on to a service at St Agnes' church in Huyton. She will then be taken to Springwood Cemetery in Allerton.
Nicola asked if anyone would like to honour her daughter's memory, they can wear purple – her favourite colour – on the day.
If you would like to donate to Jayda Jones' memorial fund click here.
In a loving tribute to the bond she had built with her daughter, Nicola said: "She never spoke a word in 11 years, I spoke to her but she couldn't speak to me but do you know what, her eyes told me everything.
"Her eyes told me if she was happy, if she was sad, if she just wanted a hug I knew, I knew everything from her eyes.
"She had the most amazing brown eyes with curly eyelashes.
"I don't know how I'm going to on without her though.
"She's got a little brother and we're trying to keep things normal for him. But we're just totally heartbroken.
"The joy she's brought to us, and the smile – I've never seen anything like it in my life.
"I just want to say how much she was loved and how much she will be missed."
Jayda Jones is survived by her mum and dad, Nicola and Terry, sister Layla, brother Terrance, her niece Blossom and "the best nanna in the world" Maureen.
Nicola said she would like to thank Jayda's consultant at Alder Hey, Dr Spinty who she said was "Jayda's real life superhero – we will be eternally grateful for all our memories."